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Advancing Surveillance for the Tennessee Birth Defects Surveillance System

Award Number: NU50DD000103
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES
PERIOD OF PERFORMANCE START DATE: 05/01/2021
PERIOD OF PERFORMANCE END DATE: 04/30/2026

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Advancing Surveillance for the Tennessee Birth Defects Surveillance System - In Tennessee, birth defects remain the leading cause of infant deaths, comprising more than one in five (21.0%) infant deaths from 2012-2017. In this timeframe, Tennessee had an average of approximately 81,000 annual live births that occurred to resident mothers, with nearly 2,800 infants per year diagnosed with a birth defect. The Tennessee Department of Health (TDH) is responsible for maintaining an ongoing program for birth defects monitoring statewide. The TDH’s Tennessee Birth Defects Surveillance System (TNBDSS), as outlined in Tennessee Code Annotated § 68-5-506, is a statewide surveillance program. The TNBDSS is charged with identifying children with birth defects; providing guidance on prevention efforts; and linking families to needed services, such as early intervention, medical financing assistance, and family support. The TNBDSS is transitioning to an internet case management system (iCMS) module and file upload feature. This system is connected to the existing Newborn Screening iCMS and can now receive information from Health Information Exchanges (HIE) in Tennessee and hospital Electronic Health Records (EHR) via file upload, which allows for faster, more complete identification of cases. TDH proposes to use resources from the cooperative agreement to support strategies and activities that will, for Component A: (1) strengthen the tracking and surveillance capacity of the TNBDSS that follows national standards; (2) improve the efficiency and effectiveness of the TNBDSS’s surveillance methodology; (3) assess and improve the TNBDSS’s readiness to exchange data with EHRs; (4) routinely monitor and improve the TNBDSS’s data quality based on CDC’s recommended quality measures and targets; (5) assess birth defects’ mortality and survival rates using TNBDSS’s linked vital records data sets; (6) prepare and report birth defects datasets based on CDC guidance; (7) collaborate with the CDC to analyze and disseminate the TNBDSS’s surveillance data; (8) enhance the TNBDSS’s efforts to utilize surveillance data in the identification of at-risk populations; (9) augment the TNBDSS’s work to implement data driven prevention strategies; (10) continue the TNBDSS’s work to improve and expand referrals to services; (11) continue TNBDSS’s work with the Tennessee Early Intervention System to develop a Memorandum of Understanding to share individualized outcome data; and (12) develop at least two evaluation projects and submit findings for scientific publication or presentation. For Component B: utilize existing relationships with the Office of Informatics and Analytics and with CDC guidance, develop and implement a plan for EHR-surveillance system interoperability to demonstrate TNBDSS’s capability to exchange data with EHRs. For Component C: leverage the interoperability developed between the TNBDSS and the Tennessee Newborn Screening program to enhance existing Critical Congenital Heart Defect (CCHD) surveillance to report individualized CCHD data to the CDC. The TNBDSS is committed to achieving these stated program outcomes: (1) strengthen the TNBDSS’s surveillance of birth defects; (2) improve the quality of TNBDSS’s birth defects surveillance data; (3) increase the TNBDSS’s contribution to multi-state data in scientific understanding of birth defects epidemiology; (4) increase the knowledge of the prevention of birth defects; (5) increase Tennessee’s ability to rapidly respond to emerging threats to mothers and babies; (6) improve the understanding of the characteristics of individuals affected by birth defects; (7) increase the TNBDSS’s dissemination of birth defects data; (8) increase the ability for TNBDSS to support the primary and secondary prevention of birth defects; (9) improve the prevention of birth defects; (10) improve birth and health outcomes; and (11) improve the quality and duration of life for individuals with birth defects.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2025 ( Subtotal = $350,000 )
2025	2025	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	4/22/2025	NON-COMPETING CONTINUATION	$350,000
2025	2024	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	4	3/25/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2025	2024	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	4/22/2025	NON-COMPETING CONTINUATION	$0
2025	2023	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	4/22/2025	NON-COMPETING CONTINUATION	$0
2025	2023	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	4	3/25/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2025	2022	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	4	3/25/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2025	2022	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	4/22/2025	NON-COMPETING CONTINUATION	$0
2025	2021	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	4	3/25/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2025	2021	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	4/22/2025	NON-COMPETING CONTINUATION	$0
														Subtotal = $350,000

Issue Date FY: 2024 ( Subtotal = $350,000 )
2024	2024	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	3/31/2024	NON-COMPETING CONTINUATION	$350,000
2024	2023	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	3/31/2024	NON-COMPETING CONTINUATION	$0
2024	2022	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	3/31/2024	NON-COMPETING CONTINUATION	$0
2024	2021	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	3/31/2024	NON-COMPETING CONTINUATION	$0
														Subtotal = $350,000

Issue Date FY: 2023 ( Subtotal = $350,000 )
2023	2023	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	3/23/2023	NON-COMPETING CONTINUATION	$350,000
2023	2022	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	3/23/2023	NON-COMPETING CONTINUATION	$0
2023	2022	HEALTH, TENNESSEE DEPT OF	710 James Robertson Pkwy, 64 Andrew Johnson Tower	Nashville	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	2	10/13/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2021	TENNESSEE DEPARTMENT OF HEALTH	710 JAMES ROBERTSON PKWY	NASHVILLE	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	3/23/2023	NON-COMPETING CONTINUATION	$0
2023	2021	HEALTH, TENNESSEE DEPT OF	710 James Robertson Pkwy, 64 Andrew Johnson Tower	Nashville	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	2	10/13/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $350,000

Issue Date FY: 2022 ( Subtotal = $349,214 )
2022	2022	Health, Tennessee Dept Of	710 James Robertson Pkwy, 64 Andrew Johnson Tower	Nashville	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	4/6/2022	NON-COMPETING CONTINUATION	$349,214
2022	2021	Health, Tennessee Dept Of	710 James Robertson Pkwy, 64 Andrew Johnson Tower	Nashville	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	4/6/2022	NON-COMPETING CONTINUATION	$0
														Subtotal = $349,214

Issue Date FY: 2021 ( Subtotal = $349,214 )
2021	2021	Health, Tennessee Dept Of	710 James Robertson Pkwy, 64 Andrew Johnson Tower	Nashville	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	1	6/22/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2021	2021	Health, Tennessee Dept Of	710 James Robertson Pkwy, 64 Andrew Johnson Tower	Nashville	TN	37243	DAVIDSON	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	1	4/27/2021	NEW	$349,214
														Subtotal = $349,214

Grand Total All Awards = $1,748,428

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Advancing Surveillance for the Tennessee Birth Defects Surveillance System

Award Number: NU50DD000103

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

PERIOD OF PERFORMANCE START DATE: 05/01/2021

PERIOD OF PERFORMANCE END DATE: 04/30/2026

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